Welcome to the Dementia DataHub Blog

June 2026

We are launching this blog as a companion to the Dementia DataHub. The DataHub itself is a data platform: maps, public use files, downloadable estimates. This is the place where the team behind it talks about what is in the data, what is being added, and what we are learning along the way.

A few things we plan to post here:

• News and announcements. New public use file (PUF) releases, new measures, new visualizations, conference presentations, advisory board updates, anything that affects how you use the system.
• Publication explainers. When our team or our collaborators publish a paper using DDH data or relevant to DDH methods, we will summarize the finding here in language closer to plain English than a journal abstract, and explain what it means for how you read the numbers on the site.
• Findings that do not warrant a paper. The DataHub generates many interesting patterns that are real and useful but not novel enough for peer review. Geographic outliers, year-over-year shifts, comparisons across measures. We will write those up here.
• Methodological background. What our case definitions capture and miss. How to compare across years when methods have changed. Why diagnosed prevalence is not the same as true prevalence, and what to do about it. The kind of context that helps you interpret what you are looking at.
• How-to posts. Walkthroughs of new features, tips for working with the public use files, code examples where useful.

We will keep posts short, grounded in evidence, and free of jargon where we can manage it. If you want something covered, write to us at dementiadatahub@norc.org. If you find something on the DataHub you want to understand better, that is also a good reason to write.

— The Dementia DataHub Team